Data Sharing

Information for Patients - Your Medical Record and The NHS

There are big changes happening to how information in your medical records is being used by NHS England. Your GP computerised medical records can now be accessed and used by the NHS. In most cases your information is anonymised so that no-one can identify you. However, some of these processes involve the extraction of patient-identifiable data. Your consent for this has been assumed by the NHS but if you are not happy with this you can tell us so that we can block unauthorised access to your records.

Care.data has been commissioned to provide data services to NHS England. The data will be used for analysis of the population as a whole, and in smaller sections e.g. by geographical areas, by age group etc, to help to plan demand and improve services for patients. The data will be “extracted” from your medical record here and held anonymously by the HSCIC, and also shared with other groups e.g. researchers.

Patient names will not extracted but your NHS number, date of birth, gender and postcode will be used. Data will be extracted to link the information from your record here at Paddock & Longwood Family Practice with any records held by hospitals. Once these links have been made your identifiable information is deleted, with only details of your health retained for analysis.

Your consent to this process has been assumed by NHS England but you can withhold your consent by telling us. You can also withhold consent on behalf of your children or anyone for whom you have a Power of Attorney. You can withhold your consent for the extraction and/or the onward use of your information, even if anonymised.

More information is available at http://www.hscic.gov.uk/patientconf and also in the leaflet “How information about you helps us to provide better care”, published by the Health and Social Care Information Centre. This is available at the bottom of this page: care.data leaflet.

If you don’t want your information to be extracted and/or shared in this way please complete the opt-out form which can also be found on the bottom of this page: - Care-Data opt out form.

Care Data Information Leaflet

Care Data Opt Out Form

This system allows health workers to access minimal information in your GP record. At the moment this contains your current medication and drug reactions only. The practice recommends that you participate in this programme as it is really for your benefit e.g. Out of Hours GP’s can see what medication you are taking. The consent process for this has already taken place but you may withdraw your consent at any stage if you wish.

This allows other health professionals to use our computer system to communicate with us. For example, the District Nurse can let us know what treatments you are having in the community. Other health professionals can only do this after asking you but the system has to be set up in advance to make this possible. The practice recommends participation in this Data Sharing as it will improve communication and your care. However, if you do consent but then later change your mind consent can be withdrawn at any time.

If you don’t want your information to be extracted and/or shared in this way please advise the receptionist.